Delve into the complex landscape of non-Hodgkin lymphoma research, where a cure is pursued amidst a backdrop of over 100 subtypes of this disease. In this episode, Dr. Kieron Dunleavy, of MedStar Georgetown University Hospital, breaks down the differences in treatments, prognosis and goals for both slow-growing and aggressive subtypes of non-Hodgkin lymphoma. Discover the […]
Accelerating Hope for Aggressive Non-Hodgkin Lymphoma Read More »
Join us as we highlight how pivots in therapy and self-advocacy were used to treat a young woman’s diagnosis of non-Hodgkin lymphoma. In this episode, Caitlyn Householder, diagnosed with diffuse large B-cell lymphoma in 2019, shares her incredible journey after finding out that she was pregnant the day she was admitted to the hospital to
Non-Hodgkin Lymphoma: Cancer & Pregnancy Read More »
Most blood cancer patients can experience side effects from their cancer diagnosis, or its treatments. In certain blood cancers, an urgent condition called tumor lysis syndrome (TLS) can develop. Dr. Tina Bhatnagar of the West Virginia University Cancer Institute joins us in this episode to explain why tumor lysis syndrome occurs and how it is
Tumor Lysis Syndrome: What Patients Need to Know Read More »
Join us as we speak to Veronika Panagiotou, a non-Hodgkin lymphoma survivor and Alique Topalian, a two-time AML survivor. In this episode, Veronika and Alique discuss the long-term side effects they have been experiencing as a result of their chemotherapy treatments. While their lives have been impacted by these treatments, they have been able to
Give Yourself Grace: Overcoming Long-term Side Effects Read More »
Join us as we speak to Laurie Adami, a follicular lymphoma (non-Hodgkin lymphoma) survivor. In this episode, Laurie shares her long journey through multiple cancer treatments, which eventually led to CAR T-cell therapy and complete remission. Hear one patient’s story of hope, as new treatments continued to come out, keeping her stable until the one
Statistics Don’t Color My Outcome: A CAR T-cell Therapy Success Read More »
Join us as we speak to lymphoma patient, Leona, her husband and caregiver, Howell, and Tia Newcomer, the CEO of CaringBridge®. In this episode, Leona and Howell discuss the benefits of utilizing patient and caregiver support resources like the online journaling site, CaringBridge, to communicate with loved ones after Leona’s diagnosis. They were comforted that
Engaging with Loved Ones: A CaringBridge Story Read More »
Don’t miss this story of a patient who refuses to let cancer define his life. Join us as we speak to Bruce Rieder, who was diagnosed in 2019 with mantle cell lymphoma (MCL), a type of non-Hodgkin lymphoma. In this episode, Bruce shares about his diagnosis and subsequent search for a clinical trial. He connected
Cancer Doesn’t Define My Life: A Non-Hodgkin Lymphoma Story Read More »
Join us as we speak to Dr. Benjamin Lampson of Dana-Farber Cancer Institute in Boston, MA. In Part Two of this two-part series on mantle cell lymphoma (MCL), Dr. Lampson discusses the development and utilization of CAR T-cell therapy for MCL. Approved in July of 2020 for relapsed or refractory MCL, CAR T-cell therapy has
Mantle Cell Lymphoma (MCL) Part Two: CAR T-Cell Therapy Read More »
Join us as we speak to Dr. Benjamin Lampson of Dana-Farber Cancer Institute in Boston, MA. In Part One of this two-part series on mantle cell lymphoma (MCL), Dr. Lampson discusses the latest treatment advances for MCL. With more treatments available than just a few years ago, Dr. Lampson shares how his conversations with his
Mantle Cell Lymphoma (MCL) Part One: Treatment Advances Read More »
Join us as we speak with Donnie Hill, a chronic lymphocytic leukemia (CLL) / small cell lymphocytic lymphoma (SLL) patient and his doctor, James Essell, MD, of Oncology Hematology Care, Inc. in Cincinnati, OH. In this episode, Donnie and Dr. Essell discuss the importance of shared decision making (SDM) and how they worked together to
Patient-Doctor Perspectives: Shared Decision Making Read More »
Join us as we speak to Dr. Peter Riedell and Dr. Benjamin Derman from University of Chicago Medicine, about the latest research coming out of the annual meeting of the American Society of Hematology (ASH). In this episode, we discuss new treatments on the horizon for lymphoma and myeloma. The doctors share how innovative therapies
Emerging Research in Lymphoma and Myeloma Read More »
Join us as we speak to Donnie Hill, a patient living with chronic lymphocytic leukemia (CLL) and small cell lymphocytic lymphoma (SLL). In this episode, Donnie shares his experience and the stresses of living with a chronic disease like CLL/SLL, the various treatments he has had since he was diagnosed in 2008 and how he
Anxiety and Hope: Living with Chronic Lymphocytic Leukemia (CLL) Read More »
Join us as we speak to Dr. Mariam Nawas and Dr. Satyajit Kosuri from University of Chicago Medicine, about graft-vs-host disease (GVHD) and the Transplant Optimization Program (TOP). In this episode, we discuss stem cell transplants, how GVHD occurs and what can be done to manage and treat symptoms. The doctors also share how the
Transplant Support and Graft-Versus-Host-Disease (GVHD) Read More »
Join us as we speak to Lyneshia Johnson-Woodland, an internet radio show host, actress and comedian who was diagnosed with non-Hodgkin lymphoma in September 2020. In this episode, Lyneshia shared how she was diagnosed with lymphoma and the difficult treatments she endured during the COVID-19 global pandemic. She also discussed the emotional impact of cancer
A New You: You Made It Through (NHL) Read More »
Join us as we speak to Erin Galyean, a pharmaceutical sales trainer, professional speaker, and published author. In this episode, Erin tells us how, after losing her father to non-Hodgkin lymphoma and then helping care for her sister, who was diagnosed with the same disease 20 years later, she learned that family and friends who
How to Become a Great Patient Advocate Read More »
Join us as we speak to Nikki Steltenkamp, a young adult, non-Hodgkin lymphoma survivor. Nikki, an engineer, was 24 years old when she was diagnosed with primary mediastinal B-cell lymphoma. In this episode, we hear about her intense treatments that finished up just as the world was entering a global pandemic. She also shares her experiences
Cancer and a Pandemic – A Non-Hodgkin Lymphoma Story Read More »
Join us as we speak to Dr. Grzegorz (Greg) Nowakowski, a physician researcher and Professor of Medicine at the Mayo Clinic in Rochester, Minnesota, who also leads the Mayo Clinic Aggressive Lymphoma program. In this episode, Dr. Nowakowski discusses clinical trials for lymphoma patients, including recent advancements and how clinical trials work. He also discusses the benefits
Clinical Trials in Lymphoma: An Evolution, Not A Revolution Read More »
Join us as we speak to Dr. Caron Jacobson, an Assistant Professor of Medicine at Harvard Medical School and a lymphoma physician and researcher at the Dana-Farber Cancer Institute. In this episode, Dr. Jacobson shares about the use and benefits of CAR T-cell therapy in B-cell cancers, such as diffuse large B-cell lymphoma (DLBCL), mantle
How CAR T-cell Therapy Gives Hope to Cancer Patients Read More »
Join us as we speak with Chelsea Brickham, a transgender model, actress, and professional cosplayer who was diagnosed with Stage II Hodgkin lymphoma in 2013. In this episode, Chelsea shares with us what it was like to go through cancer as a transgender female, the reaction from her family and friends, and how she maintained her
Making Your Mark: A Transgender Cancer Patient Story Read More »
Join us as we speak with Jan White, a survivor and thriver of Stage IV Non-Hodgkin Lymphoma. In this episode, Jan shares her story of how she went from facing immediate paralysis and death to using her experience to advocate for patients. She became a legislative advocate for LLS, started a website to share her
Bring It On: From Lymphoma to Advocacy Read More »
Join us as we speak to Dr. Lori Muffly and Dr. Matthew Frank from Stanford Medicine in Stanford, CA, about the recent advancements in testing for Minimal/Measurable Residual Disease (MRD). In this episode, we delve into what MRD is, which blood cancers testing is currently used on, and how we can utilize it to more
Exploring Minimal/Measurable Residual Disease (MRD) Read More »
Join us as we speak to Ola Ojewumi, a patient and health advocate with Post-Transplant Lymphoproliferative Disorder (PTLD), a type of Non-Hodgkin Lymphoma. In this episode, Ola tells us about the difficulties she has faced as a Black disabled woman with chronic pain. She shares her experiences with racism and inequities in healthcare and how
Facing Racial Disparities as a Black Disabled Patient Read More »
Join us for Part Two of a special two-part series as we speak to Dr. Christabel Cheung, a two-time Hodgkin Lymphoma Survivor. In this episode, Christabel talks about her extraordinary struggles as a young adult with cancer, such as living alone without family support and having high healthcare costs. She also delves into the health
Hodgkin Lymphoma Part 2: Struggles of a Young Adult with Cancer Read More »
Join us for a special two-part episode as we speak to Dr. Christabel Cheung, a two-time Hodgkin Lymphoma Survivor. In Part One, Christabel tells us about her longtime journey with lymphoma, including a relapse and going through the second diagnosis during a global pandemic. She shares her struggles of not only a diagnosis, where she
Hodgkin Lymphoma Part 1: Struggles of a Young Adult with Cancer Read More »
Join us as we report on the latest developments in immunotherapy from the 62nd American Society of Hematology (ASH) Annual Meeting and Exposition that was hosted virtually December 5-8, 2020. In this episode, we will be speaking to Dr. Laurie Sehn, a Clinical Professor and Researcher with the British Columbia Cancer Centre for Lymphoid Cancer
Tackling Lymphoma: Recent Advances in Immunotherapy Read More »
Dr. Hoffman from the Sylvester Comprehensive Cancer Center, University of Miami Health System in Miami, Florida speaks to us about Hodgkin lymphoma and its interesting history. Thankfully, Hodgkin lymphoma is now highly treatable and for the majority of people curable, but not for all. Dr. Hoffman talks to us about what makes Hodgkin lymphoma unique,
Your Questions Answered About Hodgkin Lymphoma Read More »
Dr. Mary Ninan speaks to Alicia, Lizette, and Edith about the most common subtype of non-Hodgkin lymphoma (NHL), known as Diffuse Large B-cell lymphoma (DLBCL). With over 70 subtypes of NHL, the priority when Dr. Ninan sees a patient with lymphoma is to confirm which subtype the patient has been diagnosed with in order to
Dr. Ninan explains Diffuse Large B-cell Lymphoma (DLBCL) Read More »
Has the Coronavirus (COVID-19) affected your non-Hodgkin lymphoma treatment? Join Alicia, Lizette and Edith as they speak with Dr. Lori Leslie about non-Hodgkin lymphoma and how patients have been receiving treatment during the coronavirus pandemic. Dr. Leslie is a part of the lymphoma division of the John Theurer Cancer Center in Hackensack NJ. She treats lymphoma
What Non-Hodgkin Lymphoma (NHL) Patients Should Know During the COVID-19 Pandemic Read More »
Join Alicia, Lizette and Edith as they speak with Dr. Benjamin Lampson. Dr. Lampson is an instructor in medicine at Dana-Farber Cancer Institute. On this episode, Dr. Lampson explains how mantle cell lymphoma (MCL) is diagnosed and treated. Dr. Lampson gives his advice for MCL patients during the coronavirus (COVID-19) pandemic. He also shares the
Mantle Cell Lymphoma (MCL) with Dr. Benjamin Lampson: What Patients Should Know Read More »
Join Alicia, Lizette and Edith as they speak with Viviana Onofre about her follicular lymphoma diagnosis that she received in November 2015. On this episode she describes minor signs that she noticed prior to being diagnosed, the importance of patients educating themselves about their diagnosis to help relieve anxiety, asking questions to better understand health
Worrying is Not My Plan: Viviana’s Story Read More »
Listen in as Alicia and Lizette speak with Stan Friedman. Stan is a trial lawyer and mantle cell lymphoma (MCL) survivor from Savannah, Georgia. After receiving abnormal lab work and noticing swollen lymph nodes that his doctor pointed out, Stan was referred to a hematologist/oncologist for a bone marrow biopsy. Join them as Stan describes
My MCL Diagnosis: Stan’s Story Read More »
Join Alicia and Lizette as they speak with Dr. Robert Chen about the treatment of mantle cell lymphoma (MCL). Dr. Chen is a hematologist/oncologist at City of Hope in Duarte, California. On this episode, Dr. Chen explains the different variables taken into consideration when choosing the proper treatment for a MCL patient. He also discusses
Treating Mantle Cell Lymphoma Read More »
With over 60 types of lymphomas, a lymphoma diagnosis can be very confusing. Listen in as Alicia and Lizette speak with hematologist/oncologist Dr. Robert Chen from City of Hope in Duarte, California about mantle cell lymphoma (MCL). On this episode, they discuss how MCL is diagnosed, indolent vs aggressive lymphomas, and the importance of knowing what to research before attempting to learn about a
Mantle Cell Lymphoma: Indolent vs Aggressive Read More »
Listen in as Guest Speaker, Shona Lovie, from The Leukemia & Lymphoma Society (LLS) speaks with Heather Juliet, a young adult survivor and an attendee onsite at CancerCon 2018 in Denver, Colorado. Heather knew something was wrong for many years but each time she went to the doctor she was met with ‘you’re fine’, ‘you’re too
Live at CancerCon with Heather Juliet: Young Adult Advocate & Mentor Read More »
Listen in as Guest Speaker, Shona Lovie, from The Leukemia & Lymphoma Society (LLS) speaks with Sara Davenport, a young adult survivor and Blood Cancer panelist, onsite at CancerCon 2018 in Denver, Colorado. Having been diagnosed with thyroid cancer first and later with non-Hodgkin lymphoma, Sara talks about her journey, how she was introduced to
Live at CancerCon with Sara Davenport: Panelist & Young Adult Survivor Read More »
Join us on this episode as Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) speak with Dr. Pallawi Torka, Assistant Professor of Oncology and Co-Program Director of the Hematology/Oncology Fellowship Program, at Roswell Park Comprehensive Cancer in Buffalo, NY. Dr. Torka speaks about her experience diagnosing and treating Hodgkin lymphoma and why shared
A Bright Future for Hodgkin Lymphoma Read More »
In its early stages, cutaneous t-cell lymphoma (CTCL) may be mistaken for a skin condition like eczema. Many people have a hard time grasping how something that arises in the skin is actually considered a blood cancer. Listen in as Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) speak with Dr. Jasmine Zain,
CTCL: Skin Lymphoma, Not Skin Cancer Read More »
Rachelle is a commercial actor, model, mother, wife and lymphoma survivor, who shares with Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) how her world changed after an annual visit to her OBGYN doctor. A lump which she attributed to one of the effects of pregnancy, ended up being something she never would
I Am a Person, Not a Percentage: Rachelle’s Story Read More »
In her junior year of college and new to Los Angeles, Hodgkin’s Lymphoma was the furthest thing from Racheli’s mind. Join Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) as Racheli walks them through how a presumed head cold was misdiagnosed. Listen in as she shares how she was able to press play
Life on Pause: Racheli’s Story Read More »
Being diagnosed with a blood cancer can be overwhelming. On this episode, Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) speak with David, a diffuse large B-cell lymphoma (DLBCL) survivor, and Dr. John Leonard from Weill Cornell Medical College about David’s lymphoma diagnosis. David and Dr. Leonard share helpful information for both newly-diagnosed and long-term
Diagnosed with Diffuse Large B-Cell Lymphoma (DLBCL). Now what? Read More »