Survivorship

The Bloodline Live: Emphasizing the Patient Voice in Young Adult Cancer Care

Leave a Comment / Children and young adults, English, Health Disparities, Mental Health, Survivorship

When adolescents and young adults (AYA) are diagnosed with cancer, they face unique challenges that aren’t seen as frequently in other age groups.  Healthcare and nonprofit professionals around the world are listening to patients and researching these issues to improve quality of life during and after treatment. In this episode, we are taking you onsite to the […]

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Fueling Hope: Nutrition Insights for Chronic Myeloid Leukemia (CML)

3 Comments / Chronic myeloid leukemia, English, Nutrition, Survivorship

Nourishing your body after a cancer diagnosis can seem like an impossible task when your mind is focused on survival. Join us as we talk to chronic myeloid leukemia (CML) patient, Jonathan Daige, and Registered Dietitian, Jennifer Redlich, about healthy eating and the benefits of a balanced diet. In this episode, Jonathan, a three-time cancer

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Quality-of-Life: Managing Cancer-Related Fatigue

15 Comments / English, Survivorship, Treatment

Cancer-related fatigue can be a tremendous burden on patients and caregivers. In this episode, we speak to Dr. Mariam Nawas and oncology nurse, Mary Lappe, of University of Chicago Medicine, about how cancer-related fatigue is identified and managed. Patients and caregivers will be empowered to work with their treatment teams, addressing cancer-related fatigue to improve

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Healing Through Writing: An Odyssey Through Acute Myeloid Leukemia (AML)

4 Comments / Acute myeloid leukemia, English, Survivorship, Transplant

As a cancer patient or caregiver, telling your story can not only be a way to update loved ones about your condition or be a comfort to current patients, it can be healing for yourself. In this episode, we speak to Steve Buechler about his treatment for acute myeloid leukemia as well as his experience through

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Perspectives on Quality of Life: Chronic Myeloid Leukemia (CML)

Leave a Comment / Chronic myeloid leukemia, English, Mental Health, Survivorship, Treatment

Join us as we hear two different perspectives from people living with chronic myeloid leukemia (CML); Tim Sohn, a 16-year survivor and Becky Dame, a 32-year survivor. In this episode, we hear how CML treatment has changed since 1991, when Becky was diagnosed. Becky had a difficult journey through cycles of relapse, transplant, and remission,

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Give Yourself Grace: Overcoming Long-term Side Effects

11 Comments / Acute myeloid leukemia, English, Non-Hodgkin lymphoma, Survivorship, Treatment

Join us as we speak to Veronika Panagiotou, a non-Hodgkin lymphoma survivor and Alique Topalian, a two-time AML survivor. In this episode, Veronika and Alique discuss the long-term side effects they have been experiencing as a result of their chemotherapy treatments. While their lives have been impacted by these treatments, they have been able to

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Improving Quality of Life Through Wellness Practices

2 Comments / Chronic lymphoblastic leukemia, English, Survivorship, Treatment

Join us as we speak to Heidi MacAlpine, a chronic lymphocytic leukemia (CLL) patient and occupational therapist. In this episode, Heidi talks to us about her diagnosis of CLL and how she has utilized wellness techniques to reduce inflammation and maintain a good quality of life while on a watch and wait protocol.  This episode

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Engaging with Loved Ones: A CaringBridge Story

3 Comments / Caregivers, English, Non-Hodgkin lymphoma, Survivorship

Join us as we speak to lymphoma patient, Leona, her husband and caregiver, Howell, and Tia Newcomer, the CEO of CaringBridge®. In this episode, Leona and Howell discuss the benefits of utilizing patient and caregiver support resources like the online journaling site, CaringBridge, to communicate with loved ones after Leona’s diagnosis. They were comforted that

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Community Outreach In The Field: Blood and Chess Atlanta

Leave a Comment / English, Health Disparities, Myeloma, Survivorship

Please join us for a brand new series called, Community Outreach In The Field, where our field correspondents, comprised of LLS Staff, will be interviewing health advocates, patients, caregivers and healthcare professionals in the communities in which they serve. These episodes will give the listener the feel that they are right in the middle of

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LIVE! at CancerCon: Navigating Young Adult Cancer

Leave a Comment / Children and young adults, English, Survivorship

Please join us for our second live episode from CancerCon®, a young adult cancer conference presented by Stupid Cancer®. In this episode, we’ll be speaking with experts who discussed survivorship planning, imposter syndrome, and developing a growth mindset. Cancer patients and survivors of all ages, whether newly diagnosed, in treatment or post-treatment, can benefit from

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LIVE! At CancerCon: A Journey Through Survivorship

4 Comments / Children and young adults, English, Survivorship

Please join us for this special episode live from CancerCon®, a young adult cancer conference presented by Stupid Cancer®. In this episode, we’ll be speaking with patients and survivors about what the word, “survivorship” means to them. We found the responses to this question can vary from patient to patient and even change once treatment

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Mental Health and Myeloma: A Story of Resilience

9 Comments / Coronavirus (COVID-19), English, Mental Health, Myeloma, Parenting, Survivorship, Treatment

Join us as we speak to Damion Davis, a myeloma patient and licensed professional counselor. In this episode, Damion talks about his myeloma diagnosis and how he reached remission after a stem cell transplant. Dealing with the difficulty of a cancer diagnosis as a husband and father of young daughters, Damion knew the benefits that

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Patient-Doctor Perspectives: Hope in the Uncertainty of AML

3 Comments / Acute myeloid leukemia, Advocacy, Chimeric antigen receptor (CAR) t-cell therapy, Clinical Trials, English, Leukemia, Survivorship

Join us as we speak with Charles Huang and Dr. Gabriel Mannis in honor of AML Awareness Day (April 21st). In this episode, Charles tells us about his treatment for AML, participation in clinical trials, and shares about his struggle to find a bone marrow donor as an Asian Pacific Islander. Charles then turned his

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Patient-Doctor Perspectives: Shared Decision Making

9 Comments / Advocacy, Chronic lymphoblastic leukemia, Chronic myeloid leukemia, English, Leukemia, Lymphoma, Non-Hodgkin lymphoma, Survivorship

Join us as we speak with Donnie Hill, a chronic lymphocytic leukemia (CLL) / small cell lymphocytic lymphoma (SLL) patient and his doctor, James Essell, MD, of Oncology Hematology Care, Inc. in Cincinnati, OH. In this episode, Donnie and Dr. Essell discuss the importance of shared decision making (SDM) and how they worked together to

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Addressing Racial Health Disparities Through Community Outreach

1 Comment / English, Health Disparities, Myeloma, Survivorship

Join us as we speak to Dr. Lorna McNeill, a Professor and Associate Director for Health Disparities and Community Outreach at MD Anderson Cancer Center in Houston, TX, along with a special guest from our LLS Patient and Community Outreach team, Erika Pomares. In this episode, Dr. McNeill shares how people of color, particularly African

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Making a Difference Through Nutrition

1 Comment / English, Survivorship, Treatment

Join us as we speak to Michelle Bratton, a registered dietitian and certified oncology nutritionist with LLS’s PearlPoint Nutrition Services®. In this episode, Michelle shares the benefits of nutrition throughout treatment and survivorship. Rather than cutting out foods, she changes the narrative for cancer patients by encouraging them to nourish their bodies. She also shares

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Anxiety and Hope: Living with Chronic Lymphocytic Leukemia (CLL)

3 Comments / Advocacy, Chronic lymphoblastic leukemia, English, Leukemia, Lymphoma, Non-Hodgkin lymphoma, Survivorship

Join us as we speak to Donnie Hill, a patient living with chronic lymphocytic leukemia (CLL) and small cell lymphocytic lymphoma (SLL). In this episode, Donnie shares his experience and the stresses of living with a chronic disease like CLL/SLL, the various treatments he has had since he was diagnosed in 2008 and how he

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Cancer & Caregiving: Navigating My Child’s Cancer – Survivorship

Leave a Comment / Acute myeloid leukemia, Caregivers, Children and young adults, English, Leukemia, Parenting

Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of a child’s cancer journey – diagnosis, treatment, post-treatment survivorship, and the child going back

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Cancer & Caregiving: Navigating My Child’s Cancer – Schooling

Leave a Comment / Acute lymphoblastic leukemia, Caregivers, Children and young adults, English, Leukemia, Parenting

Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of a child’s cancer journey – diagnosis, treatment, post-treatment survivorship, and the child going back

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A New You: You Made It Through (NHL)

1 Comment / Coronavirus (COVID-19), English, Non-Hodgkin lymphoma, Survivorship

Join us as we speak to Lyneshia Johnson-Woodland, an internet radio show host, actress and comedian who was diagnosed with non-Hodgkin lymphoma in September 2020.  In this episode, Lyneshia shared how she was diagnosed with lymphoma and the difficult treatments she endured during the COVID-19 global pandemic. She also discussed the emotional impact of cancer

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Cancer & Caregiving: Navigating My Child’s Cancer – Treatment

Leave a Comment / Acute lymphoblastic leukemia, Caregivers, Children and young adults, English, Leukemia, Parenting

Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of a child’s cancer journey – diagnosis, treatment, post-treatment survivorship, and the child going back

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Cancer & Caregiving: Navigating My Child’s Cancer – Diagnosis

Leave a Comment / Acute myeloid leukemia, Caregivers, Children and young adults, English, Leukemia, Parenting

Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of a child’s cancer journey – diagnosis, treatment, post-treatment survivorship, and the child going back

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How to Address Physical, Emotional and Cognitive Challenges of Cancer with Palliative Care

2 Comments / English, Survivorship, Treatment

Join us as we speak to Dr. Areej El-Jawahri, a physician researcher at Massachusetts General Hospital and Associate Professor of Medicine at Harvard Medical School. In this episode, Dr. El-Jawahri shares the wonderful benefits of palliative care for both blood cancer patients and their families. Often erroneously associated with hospice or end of life care,

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Cancer & Caregiving: Navigating My Young Adult’s Cancer – Survivorship

Leave a Comment / Acute lymphoblastic leukemia, Caregivers, Children and young adults, English, Episodes, Parenting

Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young

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Cancer & Caregiving: Navigating My Young Adult’s Cancer – Moving Home

Leave a Comment / Acute lymphoblastic leukemia, Caregivers, Children and young adults, English, Episodes, Parenting

Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young

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Cancer & Caregiving: Navigating My Young Adult’s Cancer – Treatment

Leave a Comment / Acute lymphoblastic leukemia, Caregivers, Children and young adults, English, Episodes, Parenting

Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young

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Cancer & Caregiving: Navigating My Young Adult’s Cancer – Diagnosis

Leave a Comment / Acute lymphoblastic leukemia, Caregivers, Children and young adults, English, Episodes, Parenting

Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young

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Cancer and a Pandemic – A Non-Hodgkin Lymphoma Story

3 Comments / Children and young adults, English, Episodes, Lymphoma, Non-Hodgkin lymphoma, Survivorship

Join us as we speak to Nikki Steltenkamp, a young adult, non-Hodgkin lymphoma survivor.  Nikki, an engineer, was 24 years old when she was diagnosed with primary mediastinal B-cell lymphoma.  In this episode, we hear about her intense treatments that finished up just as the world was entering a global pandemic. She also shares her experiences

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Making Your Mark: A Transgender Cancer Patient Story

Leave a Comment / Advocacy, English, Health Disparities, Hodgkin lymphoma, Survivorship

Join us as we speak with Chelsea Brickham, a transgender model, actress, and professional cosplayer who was diagnosed with Stage II Hodgkin lymphoma in 2013. In this episode, Chelsea shares with us what it was like to go through cancer as a transgender female, the reaction from her family and friends, and how she maintained her

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Pushing for a Diagnosis: A Polycythemia Vera (PV) Story

Leave a Comment / Advocacy, English, Myeloproliferative Neoplasms (MPN), Polycythemia Vera (PV), Survivorship

Join us as we speak with David Wallace, a polycythemia vera (PV) patient and advocate.  In this episode, David shares how he struggled to get his diagnosis, advocated to get the treatment he needed, and finally how he found a specialist that was able to treat his PV. He used his struggles to create the website,

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I Will Survive: A Viral TikTok Star’s Journey through Acute Lymphoblastic Leukemia (ALL)

1 Comment / Acute lymphoblastic leukemia, Children and young adults, English, Survivorship

Join us as we speak to William Yank, a 23-year-old, three-time Acute Lymphoblastic Leukemia (ALL) survivor. In this episode, we hear about the variety of treatments William went through, his relapses and then subsequent stem cell transplant. Now one year out of transplant, he shares about his post-cancer journey – going viral on TikTok, becoming the

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Patient-Doctor Perspectives: Hereditary Myelodysplastic Syndromes (MDS)

2 Comments / Children and young adults, English, Episodes, Myelodysplastic Syndromes (MDS), Survivorship

Join us as we start a brand new series, Patient-Doctor Perspectives, where we explore a diagnosis from the view of a patient and doctor. In this episode, we speak to Ashley Cámara, a Myelodysplastic Syndromes (MDS) survivor and advocate and Dr. Lucy Godley from The University of Chicago Medicine. Ashley shares her story of having

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I Am a Young Adult With Cancer…Now What?

1 Comment / Acute lymphoblastic leukemia, Children and young adults, English, Episodes, Leukemia, Survivorship

Join us as we report from the 2020 Virtual CancerCon and speak to Kyle Benner, a young adult survivor of Acute Lymphoblastic Leukemia (ALL), and Nikki Yuill, a social worker with the LLS Information Resource Center. In this episode, we discuss young adult cancer (15-39 yrs) and what happens from diagnosis through survivorship. Learn about

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Facing Racial Disparities as a Black Disabled Patient

1 Comment / Advocacy, Children and young adults, English, Health Disparities, Lymphoma, Non-Hodgkin lymphoma, Survivorship

Join us as we speak to Ola Ojewumi, a patient and health advocate with Post-Transplant Lymphoproliferative Disorder (PTLD), a type of Non-Hodgkin Lymphoma. In this episode, Ola tells us about the difficulties she has faced as a Black disabled woman with chronic pain. She shares her experiences with racism and inequities in healthcare and how

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Hodgkin Lymphoma Part 2: Struggles of a Young Adult with Cancer

Leave a Comment / Children and young adults, English, Episodes, Health Disparities, Hodgkin lymphoma, Lymphoma, Survivorship

Join us for Part Two of a special two-part series as we speak to Dr. Christabel Cheung, a two-time Hodgkin Lymphoma Survivor. In this episode, Christabel talks about her extraordinary struggles as a young adult with cancer, such as living alone without family support and having high healthcare costs. She also delves into the health

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Hodgkin Lymphoma Part 1: Struggles of a Young Adult with Cancer

Leave a Comment / Children and young adults, English, Episodes, Health Disparities, Hodgkin lymphoma, Lymphoma, Survivorship

Join us for a special two-part episode as we speak to Dr. Christabel Cheung, a two-time Hodgkin Lymphoma Survivor. In Part One, Christabel tells us about her longtime journey with lymphoma, including a relapse and going through the second diagnosis during a global pandemic. She shares her struggles of not only a diagnosis, where she

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Medical Marijuana & Cancer: What you Need to Know

Leave a Comment / Advocacy, English, Episodes, Survivorship

Join us as we speak with Shelly Rosenfeld, Esq. from the Cancer Legal Resource Center and Dr. Steven Pergam from Seattle Cancer Care Alliance. Ms. Rosenfeld and Dr. Pergam presented at CancerCon during a session called, “Understanding Medical Marijuana: It’s a Joint Effort”. In this episode, our speakers dive into the various forms of marijuana,

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Strap on your Oxygen Mask First: Being a Parent with Cancer

1 Comment / Caregivers, English, Episodes, Parenting, Survivorship

Join us as we speak to Dr. Meredith Hemphill Ruden, who had an informative session at CancerCon on Parenting with Cancer. Meredith is a licensed clinical social worker, 13-year Melanoma cancer survivor and Executive Director of the Feather Foundation. In this episode, Meredith dives into the challenging topic of being a parent while dealing with

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I’m a Caregiver & Advocate: Kristin’s Story

Leave a Comment / Advocacy, Caregivers, Chronic lymphoblastic leukemia, English, Leukemia, Survivorship

Join us as we speak to Kristin Furhrmann-Simmons, a caregiver and an LLS volunteer. Kristin talks to us about caring for her father who is a CLL survivor, and how she decided to join LLS’s advocacy efforts through our Office of Public Policy.  For Kristin, it was a great way to connect with people in

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Together in the Fight Against Chronic Myeloid Leukemia (CML): Roman Reigns’ Story

1 Comment / Chronic myeloid leukemia, English, Episodes, Episodes by disease or treatment, Leukemia, Survivorship

We will be speaking with WWE Superstar, actor, and former professional football player, Joseph Anoai, who many may know as Roman Reigns. Apart from fighting opponents in the ring, Roman found himself fighting his biggest opponent yet after receiving his leukemia diagnosis back in 2007. Listen as Roman Reigns explains his cancer journey to our

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Creating Something Bigger Than Myself Despite Cancer: Brett Hagler’s Story

1 Comment / Children and young adults, English, Survivorship

Join this conversation as Alicia, Edith and Lizette sit down to chat with Brett Hagler.  Brett is an author, cancer survivor, and CEO of New Story, an organization that pioneers solutions to end global homelessness by working to create the world’s first 3D-printed community. On this episode, Brett explains how his chondrosarcoma diagnosis helped to

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Understanding Racial and Ethnic Disparities Within Healthcare

2 Comments / English, Health Disparities, Myeloma, Survivorship

Join this insightful conversation as Alicia, Edith and Lizette sit down to chat with Dr. Stephen B. Thomas, one of the nation’s leading scholars in the effort to eliminate racial and ethnic health disparities. Dr. Thomas is a Professor of Health Policy & Management and Director of the Maryland Center for Health Equity at the

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Coping with the Challenges of Living in Isolation

Leave a Comment / English, Survivorship

May is Mental Health Awareness Month. The Leukemia & Lymphoma Society (LLS) recognizes the unique issues faced by blood cancer patients and caregivers from the moment of diagnosis throughout survivorship. These include psychosocial and emotional effects such as relationship stress, anxiety, depression, survivor guilt and more, which are further compounded by current events. Increased awareness

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What Blood Cancer Patients Need to Know About COVID-19

Leave a Comment / Coronavirus (COVID-19), English, Survivorship

What does the effect of the virus have on blood cancer patients? What are hospitals doing to ensure cancer patients can still get treatment during this pandemic? What makes COVID-19 so different than other viruses? Has there been any progress made regarding treatment for COVID-19? Join us on this episode as Alicia and Lizette speak

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How Will My Child’s Cancer Diagnosis Impact Their Emotions?

Leave a Comment / Children and young adults, English, Survivorship

When you think about a pediatric patient, they are not a child living in a vacuum. They are part of a very complex system that is suddenly impacted by a cancer diagnosis. Psychosocial care helps to address every piece of that complicated system to successfully get patients the treatment that they need. Join Alicia and

How Will My Child’s Cancer Diagnosis Impact Their Emotions? Read More »

Diagnosed with Myeloma: What Should I Eat?

Leave a Comment / English, Myeloma, Survivorship

Eating a well-balanced diet is important, especially with a diagnosis of multiple myeloma. A proper diet during and after cancer treatment can help you feel better, maintain your strength, and positively impact recovery time. Listen in as Alicia and Lizette speak with Gina DeLuca. Gina is an Outpatient Oncology Dietitian for the Center for Cancer Care

Diagnosed with Myeloma: What Should I Eat? Read More »

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