Cancer related costs can be an overwhelming burden for patients on Medicare. However, new changes in Medicare will directly impact cancer patients and ease this financial burden. In this episode, Brian Connell, the Vice President of Federal Affairs at LLS, discusses the new changes in Medicare for 2024 and 2025, as a result of the […]
Be Informed: Beneficial Medicare Changes Read More »
Join us as we speak with Charles Huang and Dr. Gabriel Mannis in honor of AML Awareness Day (April 21st). In this episode, Charles tells us about his treatment for AML, participation in clinical trials, and shares about his struggle to find a bone marrow donor as an Asian Pacific Islander. Charles then turned his
Patient-Doctor Perspectives: Hope in the Uncertainty of AML Read More »
Join us as we speak with Donnie Hill, a chronic lymphocytic leukemia (CLL) / small cell lymphocytic lymphoma (SLL) patient and his doctor, James Essell, MD, of Oncology Hematology Care, Inc. in Cincinnati, OH. In this episode, Donnie and Dr. Essell discuss the importance of shared decision making (SDM) and how they worked together to
Patient-Doctor Perspectives: Shared Decision Making Read More »
Join us as we speak to Donnie Hill, a patient living with chronic lymphocytic leukemia (CLL) and small cell lymphocytic lymphoma (SLL). In this episode, Donnie shares his experience and the stresses of living with a chronic disease like CLL/SLL, the various treatments he has had since he was diagnosed in 2008 and how he
Anxiety and Hope: Living with Chronic Lymphocytic Leukemia (CLL) Read More »
Join us as we speak with Chelsea Brickham, a transgender model, actress, and professional cosplayer who was diagnosed with Stage II Hodgkin lymphoma in 2013. In this episode, Chelsea shares with us what it was like to go through cancer as a transgender female, the reaction from her family and friends, and how she maintained her
Making Your Mark: A Transgender Cancer Patient Story Read More »
Join us as we speak with David Wallace, a polycythemia vera (PV) patient and advocate. In this episode, David shares how he struggled to get his diagnosis, advocated to get the treatment he needed, and finally how he found a specialist that was able to treat his PV. He used his struggles to create the website,
Pushing for a Diagnosis: A Polycythemia Vera (PV) Story Read More »
Join us as we speak with Jan White, a survivor and thriver of Stage IV Non-Hodgkin Lymphoma. In this episode, Jan shares her story of how she went from facing immediate paralysis and death to using her experience to advocate for patients. She became a legislative advocate for LLS, started a website to share her
Bring It On: From Lymphoma to Advocacy Read More »
Join us as we speak to Ola Ojewumi, a patient and health advocate with Post-Transplant Lymphoproliferative Disorder (PTLD), a type of Non-Hodgkin Lymphoma. In this episode, Ola tells us about the difficulties she has faced as a Black disabled woman with chronic pain. She shares her experiences with racism and inequities in healthcare and how
Facing Racial Disparities as a Black Disabled Patient Read More »
Join us as we speak with Shelly Rosenfeld, Esq. from the Cancer Legal Resource Center and Dr. Steven Pergam from Seattle Cancer Care Alliance. Ms. Rosenfeld and Dr. Pergam presented at CancerCon during a session called, “Understanding Medical Marijuana: It’s a Joint Effort”. In this episode, our speakers dive into the various forms of marijuana,
Medical Marijuana & Cancer: What you Need to Know Read More »
Join us as we speak to Kristin Furhrmann-Simmons, a caregiver and an LLS volunteer. Kristin talks to us about caring for her father who is a CLL survivor, and how she decided to join LLS’s advocacy efforts through our Office of Public Policy. For Kristin, it was a great way to connect with people in
I’m a Caregiver & Advocate: Kristin’s Story Read More »