Episodes

Empowering Lives: Advancements in Chronic Lymphocytic Leukemia

4 Comments / Chronic lymphoblastic leukemia, Clinical Trials, English, Leukemia, Treatment

Join us as we sit down with Dr. Deborah Stephens from the University of Utah, as we discover the latest breakthroughs in treating chronic lymphocytic leukemia (CLL).  We also gain valuable insights into enhancing patient’s quality of life In this episode, Dr. Stephens emphasizes the importance of effective communication with your healthcare team, unveiling strategies […]

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Accelerating Hope for Aggressive Non-Hodgkin Lymphoma

1 Comment / Clinical Trials, English, Lymphoma, Non-Hodgkin lymphoma, Treatment

Delve into the complex landscape of non-Hodgkin lymphoma research, where a cure is pursued amidst a backdrop of over 100 subtypes of this disease. In this episode, Dr. Kieron Dunleavy, of MedStar Georgetown University Hospital, breaks down the differences in treatments, prognosis and goals for both slow-growing and aggressive subtypes of non-Hodgkin lymphoma. Discover the

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Treating Rare Disease with Compassion: Chronic Myelomonocytic Leukemia (CMML)

Leave a Comment / Chronic Myelomonocytic Leukemia, Clinical Trials, English, Leukemia, Treatment

While chronic myelomonocytic leukemia (CMML) is a rare disease, it is not rare to the patients and loved ones who are affected by it. In this episode, Dr. Mrinal Patnaik of the Mayo Clinic in Rochester, MN, discusses the unique aspects of CMML and how it is classified and treated.  Dr. Patnaik shares the latest

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The Bloodline Live: Emphasizing the Patient Voice in Young Adult Cancer Care

Leave a Comment / Children and young adults, English, Health Disparities, Mental Health, Survivorship

When adolescents and young adults (AYA) are diagnosed with cancer, they face unique challenges that aren’t seen as frequently in other age groups.  Healthcare and nonprofit professionals around the world are listening to patients and researching these issues to improve quality of life during and after treatment. In this episode, we are taking you onsite to the

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Community Outreach in The Field: Red, Bred & Led Houston

Leave a Comment / Caregivers, English, Health Disparities, Myeloma

Please join us for the latest episode of our Community Outreach In The Field series, where our field correspondents, comprised of LLS Staff, will be on the ground interviewing health advocates, patients, caregivers and healthcare professionals in the communities in which they serve. These episodes will make listeners feel like they are right in the

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Living A Full Life: Exploring Myeloproliferative Neoplasms (MPNs)

Leave a Comment / Clinical Trials, English, Myeloproliferative Neoplasms (MPN), Polycythemia Vera (PV), Treatment

Myeloproliferative Neoplasms (MPNS) is an umbrella term that includes myelofibrosis (MF), essential thrombocythemia (ET) and polycythemia vera (PV). In this episode, Dr. Angela Fleischman of the Chao Comprehensive Cancer Center in Orange, CA, delves into these disorders in more detail. She shares how a patient’s quality of life can be improved with the latest advancements

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Atacando las Células Cancerosa:  Avances en La Terapia de Células T con Receptores de Antígenos Quiméricos (CAR-T)

Leave a Comment / Español, Tratamiento

Únase a nosotros mientras hablamos sobre la terapia de células T con receptores de antígenos quiméricos (CAR-T, en inglés) con el Dr. Carlos Silva, hematólogo/oncólogo, especialista en trasplante de médula ósea y terapia celular del equipo de Hematología Maligna y Terapia Célular de Moffitt en el Sistema de Salud Memorial en Pembroke Pines, Florida.  En

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Fueling Hope: Nutrition Insights for Chronic Myeloid Leukemia (CML)

3 Comments / Chronic myeloid leukemia, English, Nutrition, Survivorship

Nourishing your body after a cancer diagnosis can seem like an impossible task when your mind is focused on survival. Join us as we talk to chronic myeloid leukemia (CML) patient, Jonathan Daige, and Registered Dietitian, Jennifer Redlich, about healthy eating and the benefits of a balanced diet. In this episode, Jonathan, a three-time cancer

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Quality-of-Life: Managing Cancer-Related Fatigue

15 Comments / English, Survivorship, Treatment

Cancer-related fatigue can be a tremendous burden on patients and caregivers. In this episode, we speak to Dr. Mariam Nawas and oncology nurse, Mary Lappe, of University of Chicago Medicine, about how cancer-related fatigue is identified and managed. Patients and caregivers will be empowered to work with their treatment teams, addressing cancer-related fatigue to improve

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Non-Hodgkin Lymphoma:  Cancer & Pregnancy

4 Comments / Children and young adults, English, Non-Hodgkin lymphoma, Treatment

Join us as we highlight how pivots in therapy and self-advocacy were used to treat a young woman’s diagnosis of non-Hodgkin lymphoma. In this episode, Caitlyn Householder, diagnosed with diffuse large B-cell lymphoma in 2019, shares her incredible journey after finding out that she was pregnant the day she was admitted to the hospital to

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Tumor Lysis Syndrome: What Patients Need to Know

2 Comments / Acute lymphoblastic leukemia, English, Non-Hodgkin lymphoma, Treatment

Most blood cancer patients can experience side effects from their cancer diagnosis, or its treatments. In certain blood cancers, an urgent condition called tumor lysis syndrome (TLS) can develop. Dr. Tina Bhatnagar of the West Virginia University Cancer Institute joins us in this episode to explain why tumor lysis syndrome occurs and how it is

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Healing Through Writing: An Odyssey Through Acute Myeloid Leukemia (AML)

4 Comments / Acute myeloid leukemia, English, Survivorship, Transplant

As a cancer patient or caregiver, telling your story can not only be a way to update loved ones about your condition or be a comfort to current patients, it can be healing for yourself. In this episode, we speak to Steve Buechler about his treatment for acute myeloid leukemia as well as his experience through

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Attacking the Cancer Cell: Advances in CAR T-Cell Therapy

5 Comments / Chimeric antigen receptor (CAR) t-cell therapy, Clinical Trials, English, Treatment

Please join us as we speak about CAR T-cell therapy with Dr. Carlos Silva, a Moffitt Cancer physician at Memorial Healthcare System in Pembroke Pines, Florida. In this episode, we explore the latest advances and what the future holds for CAR T-cell therapy.    This comprehensive view of CAR T-cell therapy will give blood cancer

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Chipping Away at the Iceberg: Addressing Healthcare Disparities and Equity

Leave a Comment / English, Health Disparities

Join us live from Miami, FL, as we talk about healthcare disparities and equity with Dr. Erin Kobetz of Sylvester Comprehensive Cancer Center and Seth Berkowitz, Director of Patient and Community Outreach at LLS. In this episode, we discuss how organizations like Sylvester and LLS work together to address healthcare gaps and barriers that patients

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Perspectives on Quality of Life: Chronic Myeloid Leukemia (CML)

Leave a Comment / Chronic myeloid leukemia, English, Mental Health, Survivorship, Treatment

Join us as we hear two different perspectives from people living with chronic myeloid leukemia (CML); Tim Sohn, a 16-year survivor and Becky Dame, a 32-year survivor. In this episode, we hear how CML treatment has changed since 1991, when Becky was diagnosed. Becky had a difficult journey through cycles of relapse, transplant, and remission,

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Hopeful Advancements for Chronic Myeloid Leukemia (CML)

5 Comments / Chronic myeloid leukemia, Clinical Trials, English, Treatment

Join us as we speak to Dr. Richard Larson and Dr. Anand Patel from University of Chicago Medicine about chronic myeloid leukemia (CML). In this episode, they discuss the latest advances in treatment for CML and what is on the horizon. With decades of progress with targeted treatments, CML patients are now given more hope

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Give Yourself Grace: Overcoming Long-term Side Effects

11 Comments / Acute myeloid leukemia, English, Non-Hodgkin lymphoma, Survivorship, Treatment

Join us as we speak to Veronika Panagiotou, a non-Hodgkin lymphoma survivor and Alique Topalian, a two-time AML survivor. In this episode, Veronika and Alique discuss the long-term side effects they have been experiencing as a result of their chemotherapy treatments. While their lives have been impacted by these treatments, they have been able to

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Improving Quality of Life Through Wellness Practices

2 Comments / Chronic lymphoblastic leukemia, English, Survivorship, Treatment

Join us as we speak to Heidi MacAlpine, a chronic lymphocytic leukemia (CLL) patient and occupational therapist. In this episode, Heidi talks to us about her diagnosis of CLL and how she has utilized wellness techniques to reduce inflammation and maintain a good quality of life while on a watch and wait protocol.  This episode

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Making The Decision To Live: A Myeloma Story

9 Comments / Caregivers, English, Myeloma, Stem Cell Transplant, Treatment

Join us as we speak to Tim Cooper, a multiple myeloma patient and caregiver. In this episode, Tim discusses how he was diagnosed with myeloma after sustaining a neck fracture. Unlike many patients, he was familiar with myeloma, as his mother had been diagnosed with myeloma years prior.   After multiple treatments, including chemotherapy and stem

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Statistics Don’t Color My Outcome: A CAR T-cell Therapy Success

5 Comments / Chimeric antigen receptor (CAR) t-cell therapy, Clinical Trials, English, Non-Hodgkin lymphoma

Join us as we speak to Laurie Adami, a follicular lymphoma (non-Hodgkin lymphoma) survivor. In this episode, Laurie shares her long journey through multiple cancer treatments, which eventually led to CAR T-cell therapy and complete remission. Hear one patient’s story of hope, as new treatments continued to come out, keeping her stable until the one

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Engaging with Loved Ones: A CaringBridge Story

3 Comments / Caregivers, English, Non-Hodgkin lymphoma, Survivorship

Join us as we speak to lymphoma patient, Leona, her husband and caregiver, Howell, and Tia Newcomer, the CEO of CaringBridge®. In this episode, Leona and Howell discuss the benefits of utilizing patient and caregiver support resources like the online journaling site, CaringBridge, to communicate with loved ones after Leona’s diagnosis. They were comforted that

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A Young Adult’s Journey Through Two Leukemia Diagnoses

Leave a Comment / Acute myeloid leukemia, Children and young adults, Chronic myeloid leukemia, English, Stem Cell Transplant, Treatment

Join us as we speak to John Falco, who was diagnosed with chronic myeloid leukemia (CML) in 2019 and then later diagnosed with acute myeloid leukemia (AML) in his brain in 2021. This incredibly rare second diagnosis changed the course of John’s treatment and thankfully led to him achieving a complete remission after a stem

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Instilling Hope Through Progress: Myelodysplastic Syndromes (MDS)

1 Comment / Clinical Trials, English, Myelodysplastic Syndromes (MDS), Treatment

Join us as we speak to Dr. Anand Patel and Dr. Satyajit Kosuri from The University of Chicago Medicine about the latest treatment advances for myelodysplastic syndromes (MDS). In honor of MDS Awareness Day on October 25th, the doctors discuss how MDS develops, why genetic mutations matter when choosing a treatment course, and how stem

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Cancer Doesn’t Define My Life: A Non-Hodgkin Lymphoma Story

7 Comments / English, Lymphoma, Mantle cell lymphoma, Non-Hodgkin lymphoma, Stem Cell Transplant, Treatment

Don’t miss this story of a patient who refuses to let cancer define his life.   Join us as we speak to Bruce Rieder, who was diagnosed in 2019 with mantle cell lymphoma (MCL), a type of non-Hodgkin lymphoma. In this episode, Bruce shares about his diagnosis and subsequent search for a clinical trial. He connected

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Community Outreach In The Field: Blood and Chess Atlanta

Leave a Comment / English, Health Disparities, Myeloma, Survivorship

Please join us for a brand new series called, Community Outreach In The Field, where our field correspondents, comprised of LLS Staff, will be interviewing health advocates, patients, caregivers and healthcare professionals in the communities in which they serve. These episodes will give the listener the feel that they are right in the middle of

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Achieving Long-term Remission with Chronic Lymphocytic Leukemia (CLL)

5 Comments / Chimeric antigen receptor (CAR) t-cell therapy, Chronic lymphoblastic leukemia, Clinical Trials, English

Please join us as we speak to Dr. Matthew Davids of Dana-Farber Cancer Institute. In this episode, Dr. Davids discusses current treatments for chronic lymphocytic leukemia (CLL) and the exciting possibilities for the future using immunotherapies. Dr. Davids shares how the goal of treatment is long term remission and quality of life. Since 2010, BTK

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LIVE! at CancerCon: Navigating Young Adult Cancer

Leave a Comment / Children and young adults, English, Survivorship

Please join us for our second live episode from CancerCon®, a young adult cancer conference presented by Stupid Cancer®. In this episode, we’ll be speaking with experts who discussed survivorship planning, imposter syndrome, and developing a growth mindset. Cancer patients and survivors of all ages, whether newly diagnosed, in treatment or post-treatment, can benefit from

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LIVE! At CancerCon: A Journey Through Survivorship

4 Comments / Children and young adults, English, Survivorship

Please join us for this special episode live from CancerCon®, a young adult cancer conference presented by Stupid Cancer®. In this episode, we’ll be speaking with patients and survivors about what the word, “survivorship” means to them. We found the responses to this question can vary from patient to patient and even change once treatment

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Let’s Talk About Stem Cell Transplantation: Benefits and Side Effects

9 Comments / Clinical Trials, English, Treatment

Please join us as we speak to Dr. Shernan Holtan and guest co-host from LLS, Christina Neilsen. In this episode, Dr. Holtan discusses stem cell transplants; how they work, the different types of transplants, and the side effects, including graft-vs-host disease (GVHD). Dr. Holtan shares exciting new research on reducing GVHD and provides blood cancer

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Immune System To The Rescue: Immunotherapies In Blood Cancer

10 Comments / English

Please join us as we speak to Dr. John Leonard of Weill Cornell Medicine. In this episode, Dr. Leonard discusses the broad array of immunotherapy treatments, in which a patient’s own immune system is stimulated to fight cancer cells. From CAR T-cell therapy to monoclonal antibodies to new bispecific therapies, Dr. Leonard shares how these

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En Español: Asistencia Financiera Después de su Diagnóstico

Leave a Comment / Español, Health Disparities, Tratamiento

Únase a nosotros mientras hablamos con Ana Zermeño y Ana Victoria Portillo sobre asistencia financiera y recursos para pacientes que enfrentan un diagnóstico de cáncer de la sangre. Ana Zermeño es trabajadora social del Centro Médico de la Universidad de California en San Francisco. Ana Victoria Portillo, también trabajadora social, es Especialista en Información en

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Myelodysplastic Syndromes (MDS): A Group of Diseases

5 Comments / Clinical Trials, English, Myelodysplastic Syndromes (MDS), Treatment

Please join us as we speak to Dr. Daniel Pollyea from the University of Colorado School of Medicine.  In this episode, Dr. Pollyea discusses the group of diseases that make up Myelodysplastic Syndromes (MDS) and how their variability leads to different treatments and prognoses, from active monitoring to chemotherapy and/or stem cell transplantation.  He shares

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Support and Stability: Living with CMML

7 Comments / Chronic Myelomonocytic Leukemia, English, Leukemia, Mental Health, Treatment

Please join us as we speak to Howard Willens, a chronic myelomonocytic leukemia (CMML) patient. In this episode, Howard shares how he was diagnosed with this rare blood cancer. He shares how patient support groups have assisted him, and how he no longer feels alone. His story encourages CMML patients to focus on stability and

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Mantle Cell Lymphoma (MCL) Part Two: CAR T-Cell Therapy

2 Comments / Chimeric antigen receptor (CAR) t-cell therapy, English, Lymphoma, Mantle cell lymphoma, Treatment

Join us as we speak to Dr. Benjamin Lampson of Dana-Farber Cancer Institute in Boston, MA. In Part Two of this two-part series on mantle cell lymphoma (MCL), Dr. Lampson discusses the development and utilization of CAR T-cell therapy for MCL. Approved in July of 2020 for relapsed or refractory MCL, CAR T-cell therapy has

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Mantle Cell Lymphoma (MCL) Part One: Treatment Advances

5 Comments / Coronavirus (COVID-19), English, Lymphoma, Mantle cell lymphoma, Treatment

Join us as we speak to Dr. Benjamin Lampson of Dana-Farber Cancer Institute in Boston, MA. In Part One of this two-part series on mantle cell lymphoma (MCL), Dr. Lampson discusses the latest treatment advances for MCL. With more treatments available than just a few years ago, Dr. Lampson shares how his conversations with his

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Mental Health and Myeloma: A Story of Resilience

9 Comments / Coronavirus (COVID-19), English, Mental Health, Myeloma, Parenting, Survivorship, Treatment

Join us as we speak to Damion Davis, a myeloma patient and licensed professional counselor. In this episode, Damion talks about his myeloma diagnosis and how he reached remission after a stem cell transplant. Dealing with the difficulty of a cancer diagnosis as a husband and father of young daughters, Damion knew the benefits that

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Patient-Doctor Perspectives: Hope in the Uncertainty of AML

3 Comments / Acute myeloid leukemia, Advocacy, Chimeric antigen receptor (CAR) t-cell therapy, Clinical Trials, English, Leukemia, Survivorship

Join us as we speak with Charles Huang and Dr. Gabriel Mannis in honor of AML Awareness Day (April 21st). In this episode, Charles tells us about his treatment for AML, participation in clinical trials, and shares about his struggle to find a bone marrow donor as an Asian Pacific Islander. Charles then turned his

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Innovative Therapies for Acute Leukemias

Leave a Comment / Acute lymphoblastic leukemia, Acute myeloid leukemia, Children and young adults, Clinical Trials, English, Treatment

Join us as we speak to Dr. Hongtao Liu and Dr. Adam DuVall from University of Chicago Medicine, about current and emerging cellular therapies for acute leukemias. These innovative therapies include CAR T-cell therapy, modified Natural Killer (NK) cells and stem cell transplantations. In this episode, we discuss how these groundbreaking therapies have changed the

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Protecting Patients: COVID and Vaccine Updates

Leave a Comment / Coronavirus (COVID-19), English

Join us as we speak to Dr. Lee Greenberger, the Chief Scientific Officer of The Leukemia & Lymphoma Society, and Dr. Larry Saltzman, the Executive Research Director of the LLS Patient Registry. In this episode, Dr. Greenberger and Dr. Saltzman provide important updates on the continued COVID-19 pandemic, the LLS Antibody Research Study, patients’ responses

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Patient-Doctor Perspectives: Shared Decision Making

9 Comments / Advocacy, Chronic lymphoblastic leukemia, Chronic myeloid leukemia, English, Leukemia, Lymphoma, Non-Hodgkin lymphoma, Survivorship

Join us as we speak with Donnie Hill, a chronic lymphocytic leukemia (CLL) / small cell lymphocytic lymphoma (SLL) patient and his doctor, James Essell, MD, of Oncology Hematology Care, Inc. in Cincinnati, OH. In this episode, Donnie and Dr. Essell discuss the importance of shared decision making (SDM) and how they worked together to

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Addressing Racial Health Disparities Through Community Outreach

1 Comment / English, Health Disparities, Myeloma, Survivorship

Join us as we speak to Dr. Lorna McNeill, a Professor and Associate Director for Health Disparities and Community Outreach at MD Anderson Cancer Center in Houston, TX, along with a special guest from our LLS Patient and Community Outreach team, Erika Pomares. In this episode, Dr. McNeill shares how people of color, particularly African

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Making a Difference Through Nutrition

1 Comment / English, Survivorship, Treatment

Join us as we speak to Michelle Bratton, a registered dietitian and certified oncology nutritionist with LLS’s PearlPoint Nutrition Services®. In this episode, Michelle shares the benefits of nutrition throughout treatment and survivorship. Rather than cutting out foods, she changes the narrative for cancer patients by encouraging them to nourish their bodies. She also shares

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Anxiety and Hope: Living with Chronic Lymphocytic Leukemia (CLL)

3 Comments / Advocacy, Chronic lymphoblastic leukemia, English, Leukemia, Lymphoma, Non-Hodgkin lymphoma, Survivorship

Join us as we speak to Donnie Hill, a patient living with chronic lymphocytic leukemia (CLL) and small cell lymphocytic lymphoma (SLL). In this episode, Donnie shares his experience and the stresses of living with a chronic disease like CLL/SLL, the various treatments he has had since he was diagnosed in 2008 and how he

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Under the MPN Umbrella: Exploring Myelofibrosis

1 Comment / Clinical Trials, English, Myeloproliferative Neoplasms (MPN)

Join us as we speak to Dr. Brady Stein, a clinical hematologist and researcher at the Northwestern University Feinberg School of Medicine in Chicago, IL. In this episode, Dr. Stein discusses the rare blood cancer, myelofibrosis (MF), which is a type of myeloproliferative neoplasms (MPNs). Hear about the unique characteristics of MF, how it develops,

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Cancer & Caregiving: Navigating My Parent’s Cancer – Survivorship

Leave a Comment / Caregivers, English, Myeloma

Join us for our special series where we focus on adult child caregivers of a parent with cancer.  In this series we will be listening in on a conversation between a social worker and caregiver as they navigate the various stages of a parent’s cancer journey – diagnosis, treatment, the role reversal from child to

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